059 Linda Stalters—Schizophrenia and Related Disorders Alliance of America (SARDAA)
Changing Perceptions—Key to Hope, Treatment, and Opportunity
"We can't be everywhere, yet people with the diagnosis are everywhere!" Nearly nine million Americans suffer from schizophrenia and other illnesses involving psychoses. Schizophrenia and Related Disorders Alliance of America (SARDAA) is the "we" working to make a difference in the lives of those diagnosed and their families.
Linda Stalters, a retired Advanced Practice Registered Nurse Psychotherapist, began the organization in 2008. SARDAA promotes hope, treatment, and recovery through support programs, education, collaboration, and advocacy. Their vision is that every person living with a schizophrenia or related brain disorder receives respect, appropriate treatment, and an opportunity to live a meaningful and satisfying life in a compassionate community free of discrimination.
A key to bringing about that vision is changing perceptions on several levels:
Volunteers assist in reaching these goals. They do so as speakers and educators, as videographers and artists, as advocates to state and national policy-making bodies, as organizers of new groups and as mentors to the leaders of support groups (which are led by persons who have the disease and who are themselves volunteers). Volunteers are also needed for simply saying "thank you" through notes or phone calls to supporters of the organization's work. In turn, the organization's small staff support the volunteers with training, materials, and a voice in this important work.
Linda says, "Whenever I think I might quit or when people ask, 'When are you going to retire for real?', I remember that people who live with the disease can't ever retire. I hear thanks for what we do. Those affected say, 'I am so grateful for this organization because it saved my life!'—and I can't quit!" For more information, visit sardaa.org or hearingvoicesofsupport.com.